A 5-days training course “Evidence based medicine and research in rehabilitation of childhood disabilities» has been organized on July 15-19, 2019 as a University of Pisa Summer School by the European Academy of Childhood Disability, with the support of the IRCCS Fondazione Stella Maris.
Lectures recorded during the course are available for viewing now.
Coordinator: Prof. Giovanni Cioni. Department of Clinical and Experimental Medicine, University of Pisa and IRCCS Fondazione Stella Maris
Teaching programme covering the models, the procedures and instruments that are required internationally to plan and conduct research in rehabilitation of childhood disabilities, guided by good clinical practice.
Aims of the Summer School i) to skill participants to conduct research in the field of rehabilitation of childhood disability in the work environment and at home, guided by the principles of good clinical practice and ii) to promote international collaboration in Europe in evidence based research in childhood disability.
Day 1. Patient and family-centred research – identifying a research question together
Tutors: Jules Becher (Amsterdam) & Karen van Meeteren (Weesp). Lecturer: Andrea Guzzetta (Pisa)
Welcome, Goals of Summer School
Giovanni Cioni
Why should you involve clients or family in clinical research?
Karen van Meeteren
Theory and practising the technique for asking the needs
Jules Becher
Early intervention in high-risk newborns: the VISIBLE project
Andrea Guzzetta
A general concept for treatment and clinical research
Jules Becher
Day 2. From research question to research proposal – methodological issues in childhood disability research
Tutors: Hans Forssberg (Stockholm); Juliet Goldbart (Manchester). Lecturer: Elisa Santocchi (Pisa)
Qualitative research methods in neurodisability
Juliet Goldbart
Day 3. The childhood disability research toolbox – instruments and measurements in neurodevelopmental and rehabilitation science
Tutors: Ann Christin Eliasson (Stockholm); Arnab Seal (Leeds). Lecturer: Giuseppina Sgandurra (Pisa)
Day 4. Good clinical practice in childhood disability research – fostering the credibility, scientific and ethical quality of your research
Tutor: Bernard Dan (Brussels), Afternoon: Visit to Stella Maris Foundation and main research laboratories
Good clinical practice in childhood disability research
Bernard Dan
Day 5. My career in childhood disability research – a look towards the future based on the week’s experiences
Tutors: Christopher Newman (Lausanne), Miklós Lászlo Györffi (Brussels)
A career in childhood disability research – hard skills and soft skills
Christopher Newman