Educational Lectures

Bernard Dan

Bernard Dan

Paediatric neurologist and rehabilitation physician Université libre de Bruxelles and Inkendaal Rehabilitation Hospital.

Bernard Dan is a paediatric neurologist and rehabilitation physician based in Brussels. He is professor of neuroscience at the Université libre de Bruxelles, medical director of Inkendaal Rehabilitation Hospital, and Editor-in-Chief of Developmental Medicine and Child Neurology.

Arnold Munnich

Arnold Munnich

Professor of Genetics, University Paris-Descartes & President, Imagine Foundation

Arnold Munnich is Professor of Genetics at University Paris-Descartes since 1989 and the acting president of the Imagine Foundation. He studied medicine in Paris and received his MD degree in 1979 and his PhD in Biochemistry in 1988. He is board certified in Paediatrics and in Medical Genetics in 1983.

Mathieu Chatelin

Matthieu Chatelin

Matthieu, 30 years old, was born at 25 weeks. Due to his very premature birth, he has got a cerebral palsy with secondary deficiencies. He receives assistance from PA’s for the 24 hours care he requires.

Matthieu obtained two Masters of Arts in the fields of Human Rights and International relations, thanks to the studies he completed both at University College London and the American University of Paris. He lived in London for several years prior to coming back in France during 2015.

Nathalie Maitre

Nathalie Maitre, Andrea Duncan, Rachel Byrne

Learning objectives of course

  1. Identify discrete components of the guidelines
  2. Describe current processes for diagnosis and intervention of CP in your setting
  3. Identify strengths, weaknesses, opportunities, and threats (SWOT) to implementing the guidelines in your program.
  4. Develop a process flow to adapt guidelines to your own setting

Target Audience: Neonatologists, pediatricians, therapists, nurses

Outline of the course

LEE RIDLEY

Lee Ridley, «Lost Voice Guy», UK

Lee won Britain’s Got Talent in 2018 and the BBC New Comedy Award in 2014. Lee’s other credits include I Just Called To Say… (Sky Arts), Ability (BBC Radio 4), The One Show (BBC One), Breakfast (BBC One), This Morning(ITV), Lorraine (ITV) and Comedy Central At The Comedy Store (Comedy Central UK).

Yannick Bleyenheuft

Yannick Bleyenheuft, Belgium

Professor at the Institute of Neuroscience, Université catholique de Louvain, Brussels, Belgium.
Honorary attached to the Center for Cerebral Palsy Research of the Teachers College, Columbia University, NY, USA

Hand and Arm Bimanual Intensive Therapy Including Lower Extremities has gained a growing interest since its development in 2011.

Bryce Johnson

Bryce Johnson

Inclusive Lead, Product Research & Accessibility Microsoft Corporation, Microsoft Devices, Seattle, USA

Bryce Johnson has been designing accessible experiences and technology for over 15 years. As a member of Team Xbox he was part of the core team that started the inclusive design and accessibility practice.

Darcy Fehlings

Fehlings Darcy, Stott Susan, Drake Ross, Byrne Rachel

Instructional Course objectives

Understand the neuroplastic response to chronic pain in cerebral palsy (CP)
Identify clinical tools for measuring pain in CP
Have a working knowledge of a clinical pain management framework
Identify causes of chronic pain in CP including MSK
Understand a family/stakeholder perspective of the impact of chronic pain in CP

Miller Freeman

Freeman Miller, M.D.

Dr Miller was Co-director of the Cerebral Palsy Program and the Clinical Director of the Gait Analysis Laboratory at the A.I. duPont Hospital for Children for 30 years.

His clinical practice of pediatric orthopedics is limited to children with cerebral palsy.

Reseach interests include investigation of surgical outcomes of CP surgery through gait analysis; mathematical modeling of the hip joint in children with CP, hip monitoring and management for children with CP, and management of spinal deformity in CP.

Farida Bedwei

Farida Bedwei, Ghana

Software Engineer, Disability Rights Advocate & Author Logiciel Ghana Ltd, CTO

Farida Bedwei is a software engineer who co-founded a fintech company – Logiciel, which promotes financial inclusion by building micro-banking systems for financial institutions.