Educational Lectures

Matthieu, 30 years old, was born at 25 weeks. Due to his very premature birth, he has got a cerebral palsy with secondary deficiencies. He receives assistance from PA’s for the 24 hours care he requires.

Matthieu obtained two Masters of Arts in the fields of Human Rights and International relations, thanks to the studies he completed both at University College London and the American University of Paris. He lived in London for several years prior to coming back in France during 2015.

Learning objectives of course

1. Identify discrete components of the guidelines
2. Describe current processes for diagnosis and intervention of CP in your setting
3. Identify strengths, weaknesses, opportunities, and threats (SWOT) to implementing the guidelines in your program.
4. Develop a process flow to adapt guidelines to your own setting

Target Audience: Neonatologists, pediatricians, therapists, nurses

Outline of the course

Instructional Course objectives

Understand the neuroplastic response to chronic pain in cerebral palsy (CP)
Identify clinical tools for measuring pain in CP
Have a working knowledge of a clinical pain management framework
Identify causes of chronic pain in CP including MSK
Understand a family/stakeholder perspective of the impact of chronic pain in CP

Dr Miller was Co-director of the Cerebral Palsy Program and the Clinical Director of the Gait Analysis Laboratory at the A.I. duPont Hospital for Children for 30 years.

His clinical practice of pediatric orthopedics is limited to children with cerebral palsy.

Reseach interests include investigation of surgical outcomes of CP surgery through gait analysis; mathematical modeling of the hip joint in children with CP, hip monitoring and management for children with CP, and management of spinal deformity in CP.

Opening ceremony of the 31th EACD conference in Paris.

Innovation for participation was the motto of the meeting.

Recorded at the 31th EACD conference in Paris, France, May 23, 2019.

Professor Iona Novak is Co-founder and Head of the Cerebral Palsy Alliance Research Institute. She manages the strategic development of research into the prevention and cure of cerebral palsy and supports the Australian Cerebral Palsy Register. Professor Novak is a Fulbright Scholar focused on conducting a research program of neuro-protective, neuro-regenerative and neuro-rehabilitative clinical trials in cerebral palsy.

Lecture recorded at the 31th EACD conference in Paris, France, May 23, 2019.

Jan Willem Gorter, MD, PhD, FRCP(C) is Director of CanChild, Professor of Pediatrics and Scotiabank Chair in Child Health Research at McMaster University in Canada.
Jan Willem has training in pediatric and adult physical medicine and rehabilitation with a special clinical and research interest in healthcare transition and lifecourse health development. He has extensive clinical and research experience in the transition to adulthood and leads a teen-transition clinic for adolescents with disabilities and their families at McMaster Children’s Hospital.

Closing ceremony

Recorded in Tbilisi Georgia, May 31, 2018

Giovanni Cioni, is Full Professor of Child Neurology and Psychiatry, University of Pisa, Italy. He received MD at the University of Florence and Specializations in Child Neurology and Psychiatry and in Rehabilitation Medicine at the University of Pisa and training in child neurology and rehabilitation in many Centres in Europe. He is currently Scientific Director of IRCCS Fondazione Stella Maris, National Biomedical Research Hospital for neurodevelopmental disorders, Director of the School of Specialization in Child Neurology and Psychiatry, University of Pisa. He is also Chair of the European Academy of Childhodd Disability (EACD), member of many others and in the board of several scientific journals. His main research interests are: Early brain plasticity in relation to neurodevelopmental disorders (human and animal models) and early intervention; Neuroimaging techniques (including Ultra High Field MR) and application to child neurology. He has been recipient of many international awards and author of several publications in scientific journals and books.

Lecture recorded at the 30th EACD conference in Tbilisi, Georgia, May 28-31, 2018.

Hans Forssberg is Professor in neuroscience at Karolinska Institutet and Consultant in neuropaediatrics at Astrid Lindgren Children’s Hospital in Stockholm, Sweden. He is past dean and past vice president of Karolinska Institutet and past member of the Nobel Committee for Physiology or Medicine. He has also been head of the Department of Paediatrics at Astrid Lindgren Children’s Hospital. His research has focused on children with neurodevelopmental disorders; from translational research on underlying mechanisms of motor and cognitive dysfunctions, to clinical research aiming at developing new methods for assessment and intervention. He has published more than 200 original research articles. Recently, he has shifted focus towards the global situation for children with developmental delay and disabilities, in particular in low and middle income countries. He is president of the International Alliance of Academies of Childhood Disability and past chairman of the European Academy of Childhood Disability.

Lecture recorded at the 30th EACD conference in Tbilisi, Georgia, May 28-31, 2018.