Instructional Course objectives

Understand the neuroplastic response to chronic pain in cerebral palsy (CP)
Identify clinical tools for measuring pain in CP
Have a working knowledge of a clinical pain management framework
Identify causes of chronic pain in CP including MSK
Understand a family/stakeholder perspective of the impact of chronic pain in CP

Matthieu, 30 years old, was born at 25 weeks. Due to his very premature birth, he has got a cerebral palsy with secondary deficiencies. He receives assistance from PA’s for the 24 hours care he requires.

Matthieu obtained two Masters of Arts in the fields of Human Rights and International relations, thanks to the studies he completed both at University College London and the American University of Paris. He lived in London for several years prior to coming back in France during 2015.

Learning objectives of course

  1. Identify discrete components of the guidelines
  2. Describe current processes for diagnosis and intervention of CP in your setting
  3. Identify strengths, weaknesses, opportunities, and threats (SWOT) to implementing the guidelines in your program.
  4. Develop a process flow to adapt guidelines to your own setting

Target Audience: Neonatologists, pediatricians, therapists, nurses

Outline of the course

Dr Miller was Co-director of the Cerebral Palsy Program and the Clinical Director of the Gait Analysis Laboratory at the A.I. duPont Hospital for Children for 30 years.

His clinical practice of pediatric orthopedics is limited to children with cerebral palsy.

Reseach interests include investigation of surgical outcomes of CP surgery through gait analysis; mathematical modeling of the hip joint in children with CP, hip monitoring and management for children with CP, and management of spinal deformity in CP.

Professor Iona Novak is Co-founder and Head of the Cerebral Palsy Alliance Research Institute. She manages the strategic development of research into the prevention and cure of cerebral palsy and supports the Australian Cerebral Palsy Register. Professor Novak is a Fulbright Scholar focused on conducting a research program of neuro-protective, neuro-regenerative and neuro-rehabilitative clinical trials in cerebral palsy.

Lecture recorded at the 31th EACD conference in Paris, France, May 23, 2019.

Jan Willem Gorter, MD, PhD, FRCP(C) is Director of CanChild, Professor of Pediatrics and Scotiabank Chair in Child Health Research at McMaster University in Canada.
Jan Willem has training in pediatric and adult physical medicine and rehabilitation with a special clinical and research interest in healthcare transition and lifecourse health development. He has extensive clinical and research experience in the transition to adulthood and leads a teen-transition clinic for adolescents with disabilities and their families at McMaster Children’s Hospital.