While families of children with disabilities are facing a chaotic and worrying time Professor Sylvain Brochard has taken some time out to share a few key points from the international experience of COVID-19.
Take a look at Professor Brochard’s 3 key messages from information collected and selected (colleagues in Italy, China, papers) during the week for children with disabilities and COVID-19
- COVID children may have moderate symptoms or co-infections, but cases of death are rare, even in the most affected children.
- The consequences are more likely to be expected, if still poorly estimated, on the lack of care during confinement. Maintaining a psychological and physical state for children with disabilities and their families is THE challenge of this crisis.
- Thus, health care providers not on the front line of the crisis must address this challenge
* by assessing the benefits/risks for each child
* keeping in touch with the families
* by using remote care (teleconsultation, tele-education)
How do we respond?
There is a range of web-based advice available, but you may not have time to search through. So here are a few top tips to get you started.
Family LIves share indoor activity ideas from parents such as:
Texture book - Make a texture book using different textures – like wall paper, sand paper, bubble wrap, washing scourers, foam wash cloth etc
Dress yourself - Using either a large piece of card or lining paper, draw around each other to create life-size figures. Then cut up old clothes to dress your portraits up.
Graffiti wall - Stick some blank paper on a wall and turn it into a 'graffiti wall'. You can also paint a wall with blackboard paint or put up a big white board for graffiti fun.
Home skittles - Use guttering to make a chute to play skittles.
Sensory tent - Kit out a play tent with everyday items, such as old CDs, tinsel, fairy lights – for a great sensory space.
Sensory indoor tray play- Use a plastic box, filled with different things, like dried beans, sand, shaving foam, even toothpaste, for sensory play.
Matching pairs game - Use a digital camera to photograph and make your own matching pair cards, eg: your dog, your home, family.
The range of activities on the Change4Life webpages include many that can be adapted for indoor activities for children with disabilities
It may be a challenge to keep well and cope during these unprecedented times. The additional stresses, uncertainty and chaos that the Corona virus has brought to your lives highlights the need to look after everyone in the family. Below are some tips that have been selected from on-line wellbeing resources.
Contact have a particularly helpful section about coping at home. If anxiety is an issue then stop, take a breath, exhale and repeat this three times
Get up at the same time each day and get a routine going, use video calling to stay in touch with friends and family and try to make some time for yourself.