What do people want to know about? Global Knowledge Translation and implications for research: Children's, Families' and Professionals’ knowledge priorities

Arnab Seal

Arnab Seal

Arnab is a neurodevelopmental paediatrician based in Leeds, UK and is the current Chair of the European Academy of Childhood Disability (EACD).

He is affiliated to University of Leeds and is a Course Organiser of the MSc Child Health programme in Leeds.

Arnab has a strong interest in global education and has been the Chair of the Global Professional Education Programme of the International Alliance of Academies of Childhood Disability (IAACD) from 2014. He is also a Steering Group member of the IAACD

 

 

Video recorded during the Pisa Summer School on July 17, 2019

More lectures from Pisa Summer School http://edu.eacd.org/Pisa-summer-school

Recommended resources for Parents’ Research Priorities

Beresford et al:
Priorities and Perceptions of Disabled Children and Young People and Their Parents Regarding Outcomes from Support Services
https://pdfs.semanticscholar.org/7b65/c92372492196f743667d188dd3216d1a5…

Priorities and Perceptions of Disabled Children and Young People and Their Parents Regarding Outcomes from Support Services
https://www.york.ac.uk/inst/spru/research/pdf/prioritiesAPP.pdf
 
Morris et al
Setting research priorities to improve the health of children and young people with neurodisability: a British Academy of Childhood Disability-James Lind Alliance Research Priority Setting Partnership
https://bmjopen.bmj.com/content/bmjopen/5/1/e006233.full.pdf
 
Tomlinson et al
Setting global research priorities for developmental disabilities, including intellectual disabilities and autism
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4556421/

Recommended resource for The Foundation Toolkit:

•    ICF framework: Kraus de Carmargo, Simon, Ronen, Rosenbaum
•    F-words: Gorter & Rosenbaum plus CanChild website
•    Functional Classification Scales: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5406689/
•    Life course health development approach: https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.13402
•    Goal Directed Training: https://www.researchgate.net/publication/6588638_Goal-directed_training…