Educational Lectures

EACD2021

Beyza Ünal, Judith Heumann

Elsass Foundation Prize Lecture: Children with disabilities: the future of rights and participation
00:00 Chair: Christopher Newman
00:40 The Elsass Foundation - Jens Bo Nielsen
10:00 Beyza Ünal (TED University, Ankara, Turkey)
13:27 Judith Heumann (International Disability Rights activist)
21:40 Discussion
Presented at the 33th EACD Europe  Annual Meeting, June 10, 2021

Full info available to EACD members only
EACD2021

Hannah Kuper, Christine Imms, Julia Hanes

EACD 2021 keynote session "The future of disability services, towards new models"
00:00 Chair: Dana Anaby
02:50 Professor Hannah Kuper "Health systems inclusive of childern with disabilities; why and how?
(London School of Hygiene and Tropical Medicine)
10:30 Professor Christine Imms "Models of service delivery. Australia's National Disability Insurance Scheme (Murdoch's Children's Research Institute)
19:55 Julia Hanes "Participation-based rehabilitation: Integrating parasports" (CanChild and University of Ottawa)
29:00 Discussion
Presented at the 33th EACD Europe  Annual Meeting, June 10, 2021

Full info available to EACD members only
EACD2021

Annegret Kern, Robin Christopherson

Keynote session "Technology and disability"  
00:00 Chair: Erik Domellöf
01:25 Annegret Kern (Cybathlon)
14:20 Robin Christopherson "Technology and Disability in 2041" (AbilityNet)
27:10 Discussion
Presented at the 33th EACD Europe  Annual Meeting, June 10, 2021

Full info available to EACD members only
EACD2021

Laurent Servais, Jonathan Roberts, Kristien Hens

Keynote session "Genetics, ethics and childhood disabilities: what the future holds:
00:00 Chair: Christopher Newman
02:10 Laurent Servais (University of Oxford and Liège University): "Gene therapy in neuromuscular disorders”
12:25 Jonathan Roberts (Wellcome Sanger Institute): "Disability and genetic screening”
24:24 Kristien Hens (University of Antwerp): "Genes ans childhood sisability”
43:10 Discussion
Presented at the 33th EACD Europe  Annual Meeting, June 10, 2021

Full info available to EACD members only
Kate-Milner

Dr. Kate Milner (Melbourne)

Royal Children’s Hospital Melbourne, Australia
Dr Kate Milner is a practising developmental paediatrician in the Department of Neurodevelopment & Disability, Royal Children’s Hospital Melbourne. She is also a post-doctoral research fellow in global child development and disability at the Murdoch Children’s Research Institute. Dr Milner trained in medicine at Monash University and public health at the University of New South Wales.

Full info available to EACD members only
EACD2021

Mary Jane Platt, Andrea Guzzeta, Veronica Schiariti, Bernadette Gillick

Keynote Session: What is the chemistry for a successful partnership? Showcasing four successful models of global partnerships followed by panel discussion

Presented partnerships:

  • SCPE by Mary Jane Platt (00:35)
  • BornToGetThere by Andrea Guzzeta (10:55)
  • My Abilities First by Veronica Schiariti (18:30)
  • COVID-19 Task Force by Bernadette Gillick (27:40)
  • Panel Discussion (35:20)
Full info available to EACD members only
EACD2021

Rachel Martens and Jan Willem Gorter

Rachel Martens, Family partner. Rachel is a parent with 14 years of experience of complex care systems across Canada. Her son was born with a rare chromosome diagnosis and passed away summer of 2020. Her experiences have offered her an opportunity to partner on a number of research studies and work as a Research Engagement Strategist for CanChild and Kids Brain Health Network.

Jan Willem Gorter, CanChild; McMaster University, Canada. Jan Willem Gorter, MD, PhD, FRCP(C) is the Director of CanChild, and Professor in the Department of Pediatrics and an associate member in the School of Rehabilitation Science at McMaster University. He has been an investigator at CanChild since 2008. Jan Willem has training in rehabilitation medicine (physiatry) with a special clinical and research interest in transition services for youth with developmental disabilities.

Full info available to EACD members only
Herman-Van-Rompuy

Herman Count van Rompuy

Keynote lecture by Herman Count van Rompuy former President of the European Council "Reflections from a European perspective by the first President of the European Council" presented at the 33th EACD Europe Annual Meeting, May 20, 2021

Full info available to EACD members only
Jorg-Fegert

Jörg Fegert

Prof. Dr. Jörg M. Fegert M.D. is Medial Director of the Department for Child and Adolescent Psychiatry and Psychotherapy at Ulm University Medical Center, Past President and Congress President (Ulm 2017) of the German Society for Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy (DGKJP) and Board Member of the European Society for Child and Adolescent Psychiatry (ESCAP), where he is head of the Policy Division.

Keynote lecture presented at the 33th EACD Annual Meeting, May 20, 2021.

Full info available to EACD members only
Carl-Stafstrom

Carl Stafstrom

Carl E. Stafstrom, MD, PhD is Professor of Neurology and Pediatrics, Lederer Chair in Pediatric Epilepsy, and Director of the Division of Pediatric Neurology at Johns Hopkins. He received his B.A. from the University of Pennsylvania and MD-PhD from the University of Washington-Seattle. He trained in Pediatrics at Seattle Children’s Hospital and in Pediatric Neurology at Tufts Medical Center, Boston. In addition, he did fellowship training in EEG and Epilepsy at Boston Children’s Hospital/Harvard Medical School. Dr. Stafstrom’s clinical and research interests include the mechanisms of epileptogenesis and neuronal excitability in the developing brain, the effects of seizures in the immature brain on subsequent cognitive function and seizure susceptibility, dietary approaches to epilepsy management, and children’s self-perceptions of neurologic disorders through art.

Keynote lecture presented at the 33th EACD Annual Meeting, May 20, 2021

Full info available to EACD members only